Tag Archives: fatigue

new flares..it’s always somethin’!

I had my first ‘smell flare’ this week. Smells have been taking over my world for the last couple of years. So much that my family makes fun of me and my spidey nose!  But this was off the charts horrible. I’ve never had a flare caused by something around me (other than the weather) so it was quite new and a little freaky to me.
I could tell the man was wearing too much cologne the minute he walked into our little office. I was in the back and didn’t know how strong it was, until he was taken into one of the guys’ offices near my desk.
The eyes started to water, the nose started to get itchy and my whole body started to feel tired and down right lethargic all of a sudden. I thought my allergies were acting up so I took my allergy medication. 1 1/2 hours later I was in major pain and my whole body felt ‘thick’. I went outside and sat in the sun hoping to alleviate some of the problem. The only thing I could figure was it had to be that cologne. It was overwhelmingly strong. Even to the other gyrl in the office, who does not have a ‘spidey nose’!
I had to sit outside and wait for him to leave until I could come back in the office and even then, the scent lingered so badly that my head stayed full of fog and pain. Luckily it was towards the end of the day and I was headed home shortly.  The fog hung on until the next morning.
Who knew that just a strong scent could make your body react in such a very bad way?!
It’s always something new in fibroland, isn’t it?!

a little comic relief…at my expense!

This has nothing to do with fibro but thought it could provide a little comic relief!

I’ll start by saying I think it’s highly unfair that we, as women, must wear pantyhose/tights/ or any other restrictive, hot, sweaty garments! haha
This morning I put on pantyhose under my new, cute, little skirt and headed out to work. I knew the hose were a little too small…but I didn’t have another black pair so I wore them anyway. On the way to the 2nd bus stop I was literally walking out of them.  The waist had moved down below my booty, rolling off. I went into panic mode. I couldn’t adjust them in the middle of the parking lot in broad daylight so I went into the gas station, waited for the restroom for literally 10 minutes on some guy that flushed the toilet 6 times, and removed them, then I walked across the street to CVS to buy another pair. As I was walking into the bathroom to put them on, I saw my bus go by. I almost cried. I had no choice. I got to walk to work this morning! haha The upside is I’ve lost 10 pounds in the last few weeks and this will hopefully add another pound to the that number!


oops…sick day!

Well, I started the new job on 1/31 and my first sick day was 2/28….that’s not good! Not even one full month did I make it. Oops! Not like I had control over it. It is what it is. But it sure scares me for the ‘reference’ he may provide to a new company in the next 2 months (since it’s temp through April). I truthfully could’ve easily have 2 or 3 sick days during the last 29 days but pushed through and made myself go sit at that desk and be bored to tears while feeling like hell.

I have to think in terms of ‘YES! I made it that long!’ Instead of the hard honest truth that I should’ve easily been able to make it through the whole 3 months of the project without having to call in sick. I’ve only been working a short time but I already dread going back the next day when I feel bad. I remember not minding work, it was fun at times and I honestly didn’t mind having to go day in and day out. Those days are over. Well, maybe I’ll get one week or so out of the month when I feel that way..let’s hope. Or maybe when I find something that I know is permanent, I’ll feel better about the situation.

I’ll keep working on that positive thinking that I have down so well. yes, that’s pure sarcasm. I guess all I can say is ‘oops…a sick day’ and ‘let it be.’


night sweats…night chills…

Ok so this one is fairly new to me…at least for this duration of time.

Of course I’ve woken up covered in sweat before from a bad dream or what have you, but this is happening way too frequently for me to be ok with. First I blamed it on my ‘monthly gift’ but it stayed around long after she left. I don’t recall bad dreams causing the sweating so I don’t know what’s happening. It’s definitely NOT hot in our room as the window is almost always open and 2 fans are running constantly. As a matter of fact I usually shed some clothing and blankets during these sweats and then I find myself shivering from chills, parts of the body are then in pain from being ‘so cold.’

It’s been happening off and on for about 3 weeks now, so I guess I better figure out what’s causing it. I thought it too would pass but so far no luck. One more thing to add to the list for the Dr. The list grows and grows until finally you think…’there is no way I can go over all of this with someone in one sitting and not look completely insane’ so I’m sure I’ll weed some out at the last minute and save them for a future visit. But this is not only disturbing my sleep, it makes me feel like there is something happening that shouldn’t be!

Anyone out there experiencing the same or has any ideas, I’d LOVE to hear them!


fibro related or age related?!

Do you often find yourself asking ‘is this from age or fibro?’ I feel like I do this with every little thing. Of course had I never gone to the Dr in the beginning, I’d still be believing that all of this madness is just aging.

My eyes are changing, I now need reading glasses. I”ve always had 20/20 vision! Never had glasses. My whole family wears them, but not me. Until now!

My hearing does funky things..sometimes one ear just ‘stops working’ haha! It gets very muffled and I cannot hear out of it for a few hours to a few days. Or my ears ring alot.

My hips hurt terribly after sitting or walking too much.

My teeth have new issues. I didn’t have a cavity until I was 32 years old! But now…every little thing hurts, I have 5 cavities and a root canal in progress.

I can no longer handle the foods I used to devour every day…due to spice, acidity, yeast, sugar, casein, well you get the picture!

So how do you know if these things are just age appropriate things happening to you or if the fibro beast is rearing it’s ugly head?! Does it really matter I wonder? It’s not as though you are going to be able to stop them either way. If it’s getting older then you just deal with it…you cannot turn back the clock or stop moving forward in time. If it’s fibro..there’s no cure, there’s probably no specific medication that will stop alot of these things from happening to you. Yet somehow I cant’ stop asking myself…is it age or fibro causing these things?


I’m calling it a beef hangover…

We had a bad craving for some beef last night and since I’ve only had it in small quantities for the last year I decided it’d be alright to splurge and have a deliciously succulent prime rib cut.

We really wanted Texas Roadhouse but since they are so far away out here in Cali we settle for the next best thing, Outback.  After an enjoyable dinner and an insanely full belly of prime rib, garlic taters and salad and bread we came home to watch movies.

The headache started about an hour after being home. The stomach gurgling and feeling ill started shortly after that. Oops, I overdid it. But it sure was tasty!

I tossed and turned all night and hurt like I don’t remember hurting in a long time. Everything hurt, all night. This morning I woke up to a full head, pain in areas you don’t wanna have pain in and every inch of my body hurts in one way shape or form. The shooting pains in my arms and legs feel like someone lit firecrackers INSIDE of me and they are all exploding at the same time.

I’ve done nothing else wrong, so I’m blaming the delicious beef and calling it a beef hangover. I knew better. Sometimes you have to give in to your cravings, so long as you’re prepared for the aftermath!


it’s always something, isn’t it?!

So my self diagnoses only work part of the time, of course. I’m not  a Dr, I don’t pretend to be however I do know my body better than anyone else so sometimes it works and sometimes it doesn’t…..I think we all do it. We cannot run to a Dr every single time something ‘new’ appears or we think something changed, because it’s literally ALWAYS something!

I got a grip on the headaches FINALLY. I’m pretty sure they are cluster headaches which really stinks cuz there’s really nothing I’ve found to get rid of them. They hang on for dear life for days and then they vanish as though they never existed. I did find that cutting out all casein during the week that they are around makes them less intense, so that’s good news. I tried all my fancy headache pills during that week and not one of them worked. I do have this on my list of things to chat with my new Dr about however. Hopefully there’s something out there I haven’t tried! haha yeah right!

I think I got a jump on that cold that was sneaking up on me, I overloaded on vitamins and it never became a full blown cold. Maybe I got lucky, or maybe the vitamins really worked. We never really know though, do we? We can assume for now and we can try the same strategy next time but I’ve found that the same thing rarely works twice when it comes to fibro!

I got attacked by the famous ‘rib pain’ this week, which is always such a joy to discover when you wake up. It’s as though someone took a baseball bat to both sides of my body and hit me over and over again, right on the ribs.  This one I have yet to find a ‘cure’ for. It’s a nasty predicament as it hurts to move, stretch, turn or even lie still. I’ve tried rubbing the pain away, to the point of tears. I’ve tried heat compresses, hot showers, yoga. Nothing seems to work. So I just wait this one out and luckily it only hangs on for a couple of days. It’s moved from the front, underside of my rib cage to the sides, under my arms. Ouch. The wife and I joke about who beat me in my sleep…was it her this time or the dog?!

I still give mad props to my Magnesium and my B-100 complex. I’ve tested this theory many times, usually by accident, by not taking them for a day or two, and again…it could be coincidence but the pain levels seem to be lower when I take them.  I asked the PA to test my vitamin levels when I saw him a few weeks ago and I received the results. They were in the ‘normal’ zone, but more toward the lower end so I’m guessing that without taking them every day I would have fallen into the deficient zone. I’m going to increase my dosages a little now since I know that I’m not overdoing it! I’m hoping that lowers the pain levels even further.

Week 3 of the new job and I haven’t missed a day yet. A miracle I’m calling it! 😉 I am definitely tired everyday around 3pm but I push through it and the other little pains I get to experience. I did have one day this week that I really really really wished I could have called in, but I didn’t. I can do this! No one there knows of what I go through every day. Not a lot of people do. I don’t want their pity or their pretend understanding or their every insightful ideas on how to ‘fix’ me. It’s easier just to shut up and suffer in silence. Thankfully I have you all to vent to!

Today is my day off, so I’m still in bed, playing on the computer and cuddling with the dog, listening to bird sing in the other room. I love these days. I miss them. But it really is nice to feel like part of the world again, most days.