Monthly Archives: October 2011

Savella – day 15

I’m still singing Savella’s praises! Though I did have a bit of trouble on moving up to the 50mg tablets. Dizzy, blurred vision, major chills and sweats in the same 10 minute time frame. I emailed my Dr and she said to stay on the 25mg for awhile and the side effects should diminish soon. She was right!

It’s been 14 days since my last headache! Pretty sure I don’t remember the last time that happened! Much less pain all around. As I said before, it’s not GONE, but I’ll take less any old day!

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Savella…please try this at home!

So I switched Doctors AGAIN. Not necessarily because the one I was seeing wasn’t sympathetic to my overwhelming fibro symptoms, but mostly because I simply didn’t like him. I didn’t like the way he spoke to me, I didn’t like his bedside matter. It was the best decision I’ve made since I was diagnosed with this little monster we call fibromyalgia.

I’ve only had it for 4 years, I say only because I’ve read some of the blogs here and on other sites of people who have had it for 20+ years with little to no relief. We all know that 4 days can seem like forever when you deal with it, let alone 4 years so I’m certainly not underplaying the fact that it has made my life hell for those 4 years.

Anyway, on to my point of blogging today. My first appointment with my new Dr was mainly due to the fact that my hips hurt so bad that I could not take it anymore. I had gone back to vicodin which is HORRIBLE for me to take at work, I do wierd things I don’t remember and I don’t seem to add very well while taking it, which is not good in my line of work. I do alot of accounting, so it’s kind of important to know how to add haha!

My hips were so bad to the point that I was afraid to walk more than 10-15 minutes at a time because I knew I’d have to spend 2-3 hours on ice if I did. Ice and I have a serious love/hate relationship. It helps the hip pain but it hurts the rest of me. It’s definitely a lose, lose situation for me.

I chose this Dr because she is a Dr of Osteopathy and I liked that idea. She did a full history and we talked about all of my ongoing issues. The hip pain started about 8 months ago and progressively got worse. I woke up 20+ times in the middle of the night and couldn’t lay on either side. I couldn’t sit more than 20 minutes at a time without excrutiating pain. She decided it was time for hip xrays and got the paperwork all together for me. We discussed my asthma and got that all situated and then it was time for the fibro issues.

Right off the bat she starting listing the drugs and questioning whether or not I had tried them; Cymbalta, Lyrica, Soma, narcotics, etc. Then she asked me if I had tried Savella. I had not. I have read some information on it but honestly after everything I’ve tried I just figured that this one was the same and wouldn’t work either. Until she told me that she had 8 other patients that she treats for fibro and they all swear by it. GIVE IT TO ME! Give it to me right now I said. She got a good kick out of that comment, but I wasn’t kidding. I was ready to swallow the first pill right there in her office. You know what I’m talking about….we will try darn near anything to get SOME relief, ANY relief, even if only for a few hours.

She went over the side effects with me and said she actually had samples that she would be happy to give me to try for 14 days to see if I wanted to proceed with getting the prescription. I came home and took the first pill immediately, then sat down to do some further research on it.  Nausea was the most complained about factor, I can handle a little sick stomach if it will give me pain relief, anyday. Day 3 I definitely experienced that nausea, all afternoon at work, threw up and all. Not good, but I kept my mind open and since I hadn’t had a headache for 2 days which is pretty much unheard of for me, I still could handle the nausea.

Today is day 6 on Savella, I haven’t quite gotten up to the full dosage, you work up to it by increasing mg over the course of 2 weeks. But let me tell you what…..I have not had ONE SINGLE headache. That in itself is enough for me to keep swallowing those little pills twice a day. That’s not all, my hips hurt 75%  less. (I walked 4 1/2 hours yesterday and today I got out of bed like a normal, overweight, out of shape  37 year old would. Usually I rate myself at a 75 year old woman in the morning.) My shoulders, no pain and no tingling. My knees, at the tender points, no more tender points! My ribs……nothing, no pain. I ran into the counter top today (which I do frequently) and it hurt appropriately, not for an hour later and as if I had lit it on fire.

Please, if you have fibro and you aren’t getting relief from anything else, talk to your Dr about this medication. Read up on it. Tell your other fibro friends. I know that it won’t work for all of us as these medications and fibro are never the same in every person, but even if it helps 1 out of 5 of us I’ll be happy! Nobody deserves this, nobody wants to suffer every single day from pain and fog and headaches and everything that comes along with this horrible syndrome.

I said today to my wife, ‘It feels so strange to feel ‘normal’ again’ and I do. I feel normal. I’m sure there will be flares, but if I stay at the rate I’m going they will be fewer and farther between. I’m so so so very happy that I found the Dr who suggested Savella.