Savella…please try this at home!

So I switched Doctors AGAIN. Not necessarily because the one I was seeing wasn’t sympathetic to my overwhelming fibro symptoms, but mostly because I simply didn’t like him. I didn’t like the way he spoke to me, I didn’t like his bedside matter. It was the best decision I’ve made since I was diagnosed with this little monster we call fibromyalgia.

I’ve only had it for 4 years, I say only because I’ve read some of the blogs here and on other sites of people who have had it for 20+ years with little to no relief. We all know that 4 days can seem like forever when you deal with it, let alone 4 years so I’m certainly not underplaying the fact that it has made my life hell for those 4 years.

Anyway, on to my point of blogging today. My first appointment with my new Dr was mainly due to the fact that my hips hurt so bad that I could not take it anymore. I had gone back to vicodin which is HORRIBLE for me to take at work, I do wierd things I don’t remember and I don’t seem to add very well while taking it, which is not good in my line of work. I do alot of accounting, so it’s kind of important to know how to add haha!

My hips were so bad to the point that I was afraid to walk more than 10-15 minutes at a time because I knew I’d have to spend 2-3 hours on ice if I did. Ice and I have a serious love/hate relationship. It helps the hip pain but it hurts the rest of me. It’s definitely a lose, lose situation for me.

I chose this Dr because she is a Dr of Osteopathy and I liked that idea. She did a full history and we talked about all of my ongoing issues. The hip pain started about 8 months ago and progressively got worse. I woke up 20+ times in the middle of the night and couldn’t lay on either side. I couldn’t sit more than 20 minutes at a time without excrutiating pain. She decided it was time for hip xrays and got the paperwork all together for me. We discussed my asthma and got that all situated and then it was time for the fibro issues.

Right off the bat she starting listing the drugs and questioning whether or not I had tried them; Cymbalta, Lyrica, Soma, narcotics, etc. Then she asked me if I had tried Savella. I had not. I have read some information on it but honestly after everything I’ve tried I just figured that this one was the same and wouldn’t work either. Until she told me that she had 8 other patients that she treats for fibro and they all swear by it. GIVE IT TO ME! Give it to me right now I said. She got a good kick out of that comment, but I wasn’t kidding. I was ready to swallow the first pill right there in her office. You know what I’m talking about….we will try darn near anything to get SOME relief, ANY relief, even if only for a few hours.

She went over the side effects with me and said she actually had samples that she would be happy to give me to try for 14 days to see if I wanted to proceed with getting the prescription. I came home and took the first pill immediately, then sat down to do some further research on it.  Nausea was the most complained about factor, I can handle a little sick stomach if it will give me pain relief, anyday. Day 3 I definitely experienced that nausea, all afternoon at work, threw up and all. Not good, but I kept my mind open and since I hadn’t had a headache for 2 days which is pretty much unheard of for me, I still could handle the nausea.

Today is day 6 on Savella, I haven’t quite gotten up to the full dosage, you work up to it by increasing mg over the course of 2 weeks. But let me tell you what…..I have not had ONE SINGLE headache. That in itself is enough for me to keep swallowing those little pills twice a day. That’s not all, my hips hurt 75%  less. (I walked 4 1/2 hours yesterday and today I got out of bed like a normal, overweight, out of shape  37 year old would. Usually I rate myself at a 75 year old woman in the morning.) My shoulders, no pain and no tingling. My knees, at the tender points, no more tender points! My ribs……nothing, no pain. I ran into the counter top today (which I do frequently) and it hurt appropriately, not for an hour later and as if I had lit it on fire.

Please, if you have fibro and you aren’t getting relief from anything else, talk to your Dr about this medication. Read up on it. Tell your other fibro friends. I know that it won’t work for all of us as these medications and fibro are never the same in every person, but even if it helps 1 out of 5 of us I’ll be happy! Nobody deserves this, nobody wants to suffer every single day from pain and fog and headaches and everything that comes along with this horrible syndrome.

I said today to my wife, ‘It feels so strange to feel ‘normal’ again’ and I do. I feel normal. I’m sure there will be flares, but if I stay at the rate I’m going they will be fewer and farther between. I’m so so so very happy that I found the Dr who suggested Savella.

 

 

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About fibrorelief

I was diagnosed with FMS, IBS and CFS 3 yrs ago and after trying all the medications, I've been determined to find relief naturally. View all posts by fibrorelief

9 responses to “Savella…please try this at home!

  • Karen

    I tell anybody who’ll listen about Savella! I recently realized just how much it helps me… Due to a combination of issues, I ran out & had to wait for 4 days before I could get it refilled; it was the longest 96 hours of my life (I don’t say this lightly – I’m a military veteran and a mama!) Savella is an absolute God-send!

  • kdsmithrn

    WOW I WILL HAVE TO TRY IT. I HAVE TRIED EVERYTHING ELSE. I HAVE HAD FIBRO FOR 14 YEARS NOW. I AM LIKE YOU…I WILL TAKE IT NOW…

  • Cynthia

    My daughter will be in a clinical trial starting in January for children with Fibro.I hope this works as weel for her. She has been in so much pain for so long,it really sucks.She has missed out on so much as a child. Everyone judging her and not being understanding to her illness.Wish her luck and prayers. Thank you for the encouragement and hope. Im glad your doing well and able to get back to living again.

  • Darlene

    I have had Fibro for 20 years and have been taking Savella for the past 6 months and it works better than anything else I’ve tried. I didn’t have any adverse side effects, I had begun having muscle seizures with Lyrica after taking it for 5 years or so. Before that I took Neurotin but think Savella does have the best result. I am so glad I found this blog.

    • fibrorelief

      Thank you for stopping by. I’m glad to hear that the Savella is working well for you too. I think most of the side effects have for the most part subsided, however I had to play with the dosage for quite awhile until I found what was right for me. I’ve tried to go off of it twice now both times didn’t end well. I do however believe that it’s messing with my eyesight quite alot. I hope I’m wrong!

  • Kathy C

    New to this website, YAY I found it!
    I’m 50 y.o. with fibro for 24+ yrs and still in daily denial about having it. However! I’ve been on Savella for just over a year. Headaches have decreased and my energy is increasing, albeit gradually. Unfortunately can’t say my muscle pain is any better which could be because I’m more active? (out of bed 4-6 hrs a day instead of 2).
    At month 6, I went off Savella for 1 month due to insurance issues and boy did I ever realize how much it was helping me!
    I recently fell (again, 4x in as many years) so its been a substantial setback as I injured a rib on my good side. Soooo, its going to be another uphill battle. But what other choice do I have? Not a single one.
    Having an upbeat day today. May you all have a “good” day!

    • fibrorelief

      Hi Kathy I’m glad you found it too! Thank you for stopping by and taking the time to read my ramblings! Yes activity makes a HUGE difference…I know they tell us all that in the beginning but sometimes it’s just too darn hard! The best thing to do it to make note of how you feel and when the differences occur! I hope you are recovering well from your fall. Hang in there…we all have good and bad days. let the bad go and let the good stand out most in your head! xo

      • Kathy C

        Thank you 🙂
        Because I’m in denial, i have a tremendous problem finding my activity median (?). I always over do it and pay for it. So yes i agree, activity is out best friend and also worst critic. lol
        I look forward to more of your postings and exploring the blogs here.
        Good days to all!

      • fibrorelief

        It does take awhile to find it and the problem with finding it is that it constantly changes. I can do the EXACT same thing one day and feel fine, the next day it will KILL me. It’s a battle we learn to fight on an ongoing basis, unfortunately.

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