Fibro sayings, quotes & some funny things

super fibro woman

tired funnyfoggy brain

 

 

heavily medicated

 

 

I’m not taking credit for this letter, I did not write it, I found it online and sent it to everyone I know to help them understand what I was going through. I wish I knew who did write it, I would love to give them the credit here on my blog! (If anyone knows, please let me know and I’ll be more than happy to post the credit!)

A LETTER FROM FIBROMYALGIA

Dear Miserable Human Being,

Hi, my name is Fibromyalgia, and I’m an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can’t see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.

Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.) Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn’t ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, I’m here to stay! I hear you’re going to see a doctor who can get rid of me. I’m ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you’ll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You’ll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!

Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I’m a debilitating disease. Some of them will say things like “Oh, you’re just having a bad day”, or “Well, remember, you can’t expect to do the things you used to do 20 years ago,” not hearing that you said “20 DAYS ago”! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can’t remember what you were going to say next!

In closing, you’ve probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People with Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.

Remember, I’m stuck to you like Velcro – and I expect we’ll be together for the rest of your life.

Have a nice day!! (ROFL),

 

10 best things about Fibromyalgia

(from Zazzle.com amazing website of super cool products)

  1. I save money on magazines. With brain fog, I can’t remember what I just read!
  2. I am a cheap date. No alcohol, no dessert and I still feel drunk or hungover.
  3. On ‘good day’s I feel wonderful. Other people need a much better day to feel that way.
  4. I am easy to find…I’m either at the Dr’s office or at home.
  5. I never have to make my bed because I’ll probably be right back in it.
  6. I have acquired a great lounging/sleeping wardbrobe. I rarely get dressed as nobody ever sees me.
  7. Disequilibrium saves money on amusement parks. I get the same sensations every time I stand up!
  8. I feel smarter than my Doctors…all they say is ‘I don’t know’
  9. With short-term memory impairment I can hide my own Easter eggs and Christmas presents.

Before you Judge

This is not my own article but one I’ve gotten from FMS Community at

http://www.fmscommunity.org/lettertonormals.htm and felt it should be shared because it’s so true!

thinkbeforeyoujudgeThere are the things I would like you to understand before you judge me…

Please know that being sick doesn’t mean I’m not human. I may spend most of my day flat on my back and I might not seem like great company, but I’m still me stuck inside this body. I worry about school, work, family and friends and I’d still like to hear about yours.

Please understand the difference between “happy” and “healthy”. When you’ve got the flu you probably feel miserable but it will pass. I’ve been sick for for so long that I can’t afford to be miserable all the time, in fact I work hard at not being miserable. So if I sound happy, it means that I’m happy, it does not mean that I am well. I may be in pain and sicker than ever.

Please, don’t say, “Oh, you’re sounding better!”.

I am not sounding better, I am sounding happy. If you want to comment on that, you’re welcome.

Please understand that being able to stand up for five minutes, doesn’t mean that I can stand ten minutes, or an hour. It’s likely that five minutes has exhausted my resources and I’ll need to recover – imagine an athlete after a race. They couldn’t repeat that feat right away either. With a lot of diseases you’re either paralyzed or you can move, but with Fibromyalgia it gets more confusing.

Please repeat the above paragraph substituting, “sitting up”, “walking”, “thinking”, “being sociable” and so on … it applies to everything. That’s what a fatigue-based illness does to you.

Please understand that chronic illnesses are variable. It’s quite possible (for me, it’s common) that one day I am able to walk to the park and back, and the next I’ll struggle to reach the kitchen.

Please don’t attack me when I’m ill by saying, “But you did it before!”.

If you want me to do something, ask if I can and I’ll tell you. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please don’t take it personally.

Please understand that “getting out and doing things” does not make me feel better, and can often make me worse. Fibromyalgia may cause secondary depression (wouldn’t you get depressed if you were no longer able to participate in life?) but it is not caused by depression. Telling me that I need exercise is not appreciated or correct – if I could do it, I would.

Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now – it can’t be put off or forgotten just because I’m doing something. Fibromyalgia does not forgive.

Please understand that I can’t spend all of my energy trying to get well. With a short-term illness like the flu, you can afford to put life on hold for a week or two while you get well. But part of having a chronic illness is coming to the realization that you have to spend some energy on having a life now. This doesn’t mean I’m not trying to get better. It doesn’t mean I’ve given up. It’s just how life is when you’re dealing with a chronic illness.

If you want to suggest a cure, please don’t. It’s not because I don’t appreciate the thought, and it’s not because I don’t want to get well. It’s because every one of my friends has already suggested every theory known to man. I tried them all, but quickly realized I was using up so much energy trying new treatments I was making myself sicker, not better. If there was something that cured Fibromyalgia, all of us would know about it by now.

If you read this and still want to suggest a cure, submit it in writing but don’t expect me to rush out and try it. If it is something new, with merit, I’ll discuss it with my doctor.

Please understand that getting better can be a slow process. Fibromyalgia entails numerous symptoms and it can take a long time to sort them all out.

I depend on you – people who are not sick for many things but most importantly, I need you to understand me.

The above text may be printed freely, and shared as needed providing all content is kept intact. No other person shall ever publish this work citing themselves as the author and give credit to FMS Community and link back to the original site.  Thank You.


50 responses to “Fibro sayings, quotes & some funny things

  • Amanda Folio- Lakso

    OMG funny stuff!!! Good change of pace for fibro! Thanks so much!

  • Frank Harrison

    You sometimes never get better. I’ve had it decades. Started when I was 13 I’ve been told. I’m now 55. Been in a wheelchair and out and back.It hits when you least expect it. Even typing this is a strain. I keep missing words/letters/complete lines out and have to do it again because what I think I am typing isn’t being done. I chose God to help me. Not for everyone but you never know!

  • Torri

    The “BEST” WORDS YET DESCRIBING FIBROMYALGIA,,,,, EXCEPT FOR NEVER GETTING BETTER

  • Pris

    Love all you said here..and its ALL so true..BEST words yet to describe it ..Thanks :)

  • Jennifer

    I feel like I could have written this myself…I was diagnosed 15 years ago. I just started looking for other people who have this disease…My family and friends are exhausted by my illness… I don’t even blame them… I’m beyond exhausted with it too… I never do make my bed except to change the sheets. And I roll the sheets and blankets down immediately to lay down… Thank you to whoever put my experience to words… Please DO send insights…I have not given up completely…Jen

    • kdsmithrn

      JEN I HAVE LEARNED TO TAKE THE GOOD WITH THE BAD. I TRY TO WATCH THINGS ON TV THAT R FUNNY. I MOVED TO FLORIDA LAST AUG. SO THE ONLY SUPPORT SYSTEM I HAD WAS MY HUSBAND. I AM NOW FRIENDS WITH WOMEN 10-20 YEARS MY SENIOR, I AM 49. THEY HAVE WISDOM & PATIENCE THAT I DO NOT HAVE. SOME HAVE BEAT STAGE 4 BREAST CA & A WHOLE HOST OF OTHER THINGS. WHEN I THINK OF LIVING TO BE THIER AGE I DO NOT KNOW HOW I WILL DO IT. I HAVE A RARE FORM OF MUSCULAR DYSTROPHY & JUST 6 WEEKS AGO DIAGNOSED WITH HIGH BLOOD PRESSURE, & LOW THYROID & I HAVE DEVELOPED PLATAR FIBROMAS IN MY FEET. I CANNOT LET MY MIND STAY IN DARK PLACES TOO LONG. HOW ARE THE MEDS. U R ON DOING FOR YOU? I WILL TELL U WHAT I HAVE BEEN ON FOR MANY YEARS NOW IF U WANT ME TO. I HAVE TRIED MANY DRUG COMBOS BUT THEY NEVER WORKED OUT FOR ME. MY LOWER CASE P IS BROKEN, SORRY ALL CAPS. DO NOT BE TOO HARD ON YOURSELF. I WANTED TO GO TO THE DOLLAR STORE ALL WEEK BUT I HAVE NOT MADE IT YET, BUT I WILL WHEN I CAN…KELLY

      • Jennifer

        Hi Kelly, Thanks for responding to me. I watch a lot of silly reruns to keep me distracted. I was diagnosed with a Thyroid disease about a year after my Fibro diagnoses. There are many forms of Thyroid disease. I was diagnosed with “Graves Disease”, one form of Thyroid disease. They will hopefully put you on a thyroid medication called Synthroid for low thyroid. It WILL help you with fatigue, memory and controlling your body temperature as well. I have high blood pressure as well it runs in the family. I deal with your foot problem as well… Good grief girl… we are falling apart :) I take Hydorcodene for pain… it is the cheapest, as I have no insurance at this time…I had the most success with Cymbalta but that is WAY outta my price range now…Yes, I will try to take it easier on myself… Thank you for contacting me… I’m so glad to hear from people who I can identify with!!! Jen

    • Jackie Jewett

      I hope your family survives in tact. My husband is getting really tired of it. “If I just got out more, I would feel better”

      • fibrorelief

        Hi Jackie! Yes that tends to be everyone’s answer…it gets old quick. I like to use the flu as a way to explain to people how I feel. Everyone’s had the flu so they can relate to that. I just tell them to imagine having the flu every single day of your life. Would you like to ‘get out more?’ hang in there…keep trying to explain it. I use humor more than just facts, I find people are more apt to actually read and comprehend humor, even though the real explanation isn’t funny in the least.

    • brandy

      for those who would like to there are fibro groups here on facebook and it has been very helpfull for me

  • kdsmithrn

    THIS SUMS IT ALL UP. NOT TO MENTION MUSCULAR DYSTROPHY,HYPOTHYROID,HIGH BLOOD PRESSURE, & ATTEMPTING TO WALK AROUND WITH ACORNS IN MY SHOES FROM PLANTAR FIBROMAS. THAT BEING SAID, GOD MADE VODKA 4 US…YAAAAAH !!!!

  • kdsmithrn

    SORRY ALL CAPS. MY LOWER CASE P IS SICK TOO. LOL

  • kcforest

    I had read the “Before you Judge” at fmscommunity.org and sent it to all my friends who never seem to understand. Helped some(the ones that really cared) others are still in the dark. The letter from Fibro is bang on and actually made me angry, like you would get at the bully in school who has you scared out of your wits. Frustrated, hopeless and angry….why me? I’ve been a good person, been there for my friends and family at the drop of a hat and never asked for anything in return and then this is what I get. Keeping up the fight but will never understand how it picks and chooses. Thanks for everything you do and write. It helps to feel that your not alone but I wish everyone good health and no Fibro!

  • Donna

    If your sick of me being sick, I am sooooo sick and tired of me being sick and tired of me being….. You should get what I mean.

  • kdsmithrn

    I HAVE TO LAUGH AT MYSELF ESPECIALLY WHEN I TRY TO FOLLOW A RECIPE. IT TAKES ME 10 TIMES AS LONG TO GET THE INGREDIENTS TOGETHER BECAUSE I HAVE TO READ THE SAME SENTENCES OVER & OVER & OVER. WHEN THE RECIPE SAYS PREP.TIME 15 MINUTES IN FIBRO TIME IT MEANS 45MIN TO 1 HR. CAN ANYBODY RELATE ?

    • Leanne Evans

      Oh yeah I can relate!!! I used to love all the holidays because I could cook and bake to my hearts content!! I learned side beside my Mema, as I got older I rarely used the recipe!! Now even with the recipe I mess it up a lot of times and it breaks my heart!! the good news is my daughter and grands have learned from me before it was too late and now help me or bake themselves! I used to sew a lot too but am in the process of making one of my grands a simple a line dress, nothing fancy! Took me two hours to figure out which pattern pieces to use!! Used to be 10 minutes maybe!!! I was a wreck by the time I figured it out!!! I’m soooo very tired of this!!

      • fibrorelief

        It’s so frustrating isn’t it?! But one thing at a time. Do some and rest. I have a super hard time doing that but I have to remind myself that in the long run it’s better for everyone if I do! :)

    • Elaine

      I hadn’t even thought of that as part of my Fibro, but yep I can relate. I am finding out that there are things happening that I didn’t know were fibro related. It helps having places like this to read and learn. Thank you all, it does help to know I’m not alone in this

  • kdsmithrn

    GOOD MORNING JEN. I AM ON SYNTHROID & LISINIPRIL FOR MY 2 NEW AILMENTS. I TELL PEOPLE I AM ROTTING FROM THE INSIDE OUT. HERE IS THE LIST OF ALL OTHER THINGS I INJEST: @ BEDTIME: ELAVIL 100 MG., 0.5 MG KLONOPIN, 1200 MG. NEURONTIN, ZANAFLEX 8 MG….IN THE AM I TAKE 0.5 MG KLONOPIN, I TAKE ULTRAM 50MG UPTO 4-6 TIMES A DAY( WITH 350MG OF TYLENOL @ TIMES). ICAN ALSO TAKE A NEURONTIN & ZANAFLEX DURING THE DAY IF I NEED TO. I HAVE TRIED PROVIGIL ( A DRUG USED FOR NARCOLEPSY), CYMBALTA(MADE MY TONGUE SWELL AS DID LYRICA. THIS COMBO WORKS RIGHT NOW. I WAS ON REMERON WHICH IS ANOTHER TRICYCLIC ANTIDEPR. FOR SLEEP BUT IT WAS NOT WORKING VERY GOOD ANYMORE.I CANNOT TAKE LORTAB IT MAKES ME SICK. I HAVE BEEN ON ULTRAM FOR 15 YEARS & IT REALLY HELPS. IF I AM HAVING A HORRIBLE DAY I WILL TAKE 200 MG. @ A TIME THEN I USUALLY DO NOT NEED IT AGAIN UNTIL BEDTIME. ARE YOU ON DISABILITY ? I AM 100% DISABLED. I WAS AN RN FOR 23 YEARS. I WENT THRU A COMPANY CALLED ALLSUP. THEY R NOT LAWYERS.CHECK OUT THIER WEBSITE. THEY HAD ME APPROVED IN 3 MONTHS THEN I WAS ABLE TO GET ON MEDICARE AFTER 6 MONTHS. MY DRUG BILL IS ABOUT $65.00/MO. IT IS SOOO GOOD TO TALK TO YOU. DO YOU LIVE IN A WARM CLIMATE? IT HAS HELPED ME SOME. MY BODY IS A BAROMETER SO WHEN THE WEATHER IS ABOUT TO CHANGE I KNOW A WEEK IN ADVANCE. TALK AGAIN SOON…KELLY

    • debbie

      ladies…i used to be on all kinds of meds too, everything my docs suggested i tried, as a result the fibro is NO better, but now i also have cirrohsis of the liver, which will shorten my life. i pray that they find a safe treatment for fibro SOON.

  • kdsmithrn

    JEN CAN U GET SAMPLES OF CYMBALTA ? CHECK WITH YOUR DR. OR CHECK CYMBALTA’S WEBSITE. IF U HAVE NO INS. U MAY BE ABLE TO GET IT FOR VERY LITTLE.

  • Jennifer

    Hi Kelly, I have tried to get samples of Cymbalta…it’s almost impossible in my area… and not reliable and going off of that med made me sick so I am afraid to even try to get samples as you never know if the doctor will have them on hand… I was looking up The klonopin you where talking about… I may look into that with my doctor… I have taken Neurton in the past as well… Cymbalta and Lyrica made my hands, face and feet swells up as well… I deal with some side effect no matter what I take it seems…I work part time but I am currently being harassed at work…. Its a long story but I got a new supervisor about 4 months ago and they want to change the babysitting service I have run for 13 years into a program… and have demanded that I take no days off. I got a letter from my doctor to show them I have Fibro so maybe they would not fire me… I KNOW i am lucky to have had a job I have really loved for over 13 years, I am a supervisor over the area and I could hire my own people… I have a staff of 13 and I use to just be able to call in a sub to cover me on my bad days… See, part of the long story is we got a new Head honcho… Over all of us about a year ago and since that time half of the original staff have either been fired or quit…I am one of the last to be put on the chopping block because of my part time work, I don’t get paid much and I have no insurance… so they saved me for last…It’s a complicated story…sigh… but I am working with my doctor to be able to keep my job as we are having a very difficult time trying to make ends meet as it is…without my pay check I am afraid for the future of my family… hell…I am afraid for the future, just like most Americans right now… I really do need to be on disability but my doctor has said that getting social security is nearly impossible… I know I will have to eventually so I wish I could start the process now… but as I have a job they won’t even consider me… but I believe it wont be long… This new supervisor and I have a history… Its a long sorted story but they really want me GONE… I feel so stuck…I have held on to my job because It became my identity… But I have NO energy left when I come home so NOTHING gets done at home! It’s all very over whelming as I don’t know What to do… I have contacted our new HR director and I have made a written request for a new supervisor… I am waiting for a response… But I feel that it is merely a matter of time as I am missing several days each week at work… I simply can’t keep up with this… My email is Jl.ink.dye@gmail.com… I feel I have probably said more then I should in a public forum… Perhaps we can share emails if your comfortable with that? Thanks for showing you care! I’m exhausted right now so I will wait for your reply…Thanks, Jen

  • kdsmithrn

    JEN I AM SO SORRY 4 ALL U R GOING THRU. I TOO WAS LET GO FROM A JOB AS A HOSPICE NURSE WHEN I COULD NO LONGER TAKE CALL. AT THAT TIME I DID NOT HAVE ANY FIGHT IN ME TO TRY & SAVE MY JOB. DO NOT LET A DR. TELL U HOW HARD IT IS TO GET SS DISABILITY. HE IS NOT LIVING YOUR LIFE. PLEASE GO TO ALLSUP’S WEBSITE & AT LEAST TRY. I KNOW U WOULD QUALIFY. THEY R VERY GOOD @ WHAT THEY DO WITH THE HIGHEST SUCCESS RATE OF ANY COMPANY EVER SO JUST TAKE A LOOK. THE DRAWBACK IN YOUR SITUATION IS U HAVE TO HAVE BEEN UNABLE TO WORK FOR A LENGTH OF TIME & I CANNOT RECALL WHAT THAT IS. AS FAR AS KLONOPIN IT IS AN ANTI ANXIETY DRUG THAT HAS BEEN AROUND FOR A LONG TIME SO IT IS VERY CHEAP. I THINK IT WAS $ 16.00 FOR 30 WHEN I HAD NO DRUG COVERAGE. I HAVE FOUND THE NEWER DRUGS R NOT ALL THEY R CRACKED UP 2 B. THEY COST WAY 2 MUCH & U GET NOTHING BUT BAD SIDE EFFECTS. THE DAY THE HAVE THE MAGIC PILL THAT CURES FIBRO I WILL TRY IT. I ALSO FELT I LOST MY IDENTITY WHEN I HAD 2 QUIT. I WAS DEPRESSED FOR 6 MONTHS. IT WAS LIKE LOOSING SOMEONE CLOSE. I AGREE WE SHOULD USE E-MAIL. MINE IS ( ALL LOWER CASE ) KELLYAPPLE1@ME.COM. MY LOWER CASE P IS BROKEN. I HOPE 2 GET A NEW KEYBOARD SOON. SPILLED COFFE ON IT. TALK 2 U SOON. HANG IN THERE JEN. I FEEL THE ANXIETY FROM U & WISH I COULD HELP MORE. I SEND 2 YOU A NICE GENTLE HUG FOR NOW. E-MAIL WHEN U CAN.

  • Jeanne Norwine

    This is an awesome, awesome description of what my daily life is about. My sister is in town for 1 week from out of state & I am going to sit her down and read this aloud to her. This is so real you can taste it. It will help me so much to show her how insidious & invasive this disorder is. Thank you for taking the time to write this. I will share with friends & other family as well. Enjoy your holidays!

  • Amber B

    I actually cried while reading this, I am 25 year’s old and was diagnosed with fibromyalgia when I was 23. NO ONE understands me and think’s that I can just push myself thru the day’s when I am literally exhausted! And all I can do is cry about it bc no one else that I know really understand’s me or this chronic pain:/ On top of it I have bipolar disorder so trying to stay “happy” is quite a chore…Thank you for posting this:)

    • fibrorelief

      I’m sorry that you cried reading my post but I understand completely. It is so hard when no one else understands, even though they may try they never will know and as badly as you’d like someone close to you to know how it feels you don’t want to wish this crap on your worst enemy! hang in there! Keep researching and keep trying until you find what works best for you! xo

  • Shirley

    Thank you for this….my daughter and I had a huge fight last night 5 years after I was diagosed and 8 months after my husband walked out on me. It seems my 30 year old children feel that I abanded them and no matter what I said she couldn’t see that it is simply not the case. I love my kids I believed that I was doing the best thing for them when I worked the long hours and dealt with the stress that helped lead to my condition. So I am very hurt. I will admit that I would hope that they read this and a lightbulb goes on and they are all understanding and apologetic but I know that is not to be. Thank you even though that won’t happen because I nodded throughout reading it and felt that I could have written it myself. I will safe this for people I meet in the future as I try to help them understand what this prison feels like…….

  • Kimberly Green

    I love this! It was like reading about myself. I even read it to my husbandor and we both giggles about not making the bed, which I never do because I’m always in it! Thanks for a little bit of humor, id rather laugh through the pain then cry through it!

    • fibrorelief

      Thanks for stopping by and even sharing it with your husband! I find that laughing helps FAR more than crying. Though sometimes a good long cry alone in the bathroom is beneficial too! :) If you don’t try to find the humor you get far too bogged down in the sadness and that’s just no way to live. I hope you are doing well!

  • Leanne Evans

    Best description I’ve read so far! Just wish
    I could get my family to understand!!
    Thanks

    • fibrorelief

      Hang in there….keep trying to educate them. Send them funny things that help them relate without sounding like you’re pounding information down their throats. I know they will never fully understand (unless they have FMS) but hopefully they will attempt to try! Good luck!

  • Dodie

    Nice letter, and it it so true and so many people just don’t understand. I feel like I’m a science experiment with all the different medications. Highs and lows, ups and downs, etc… I get really depressed cause I’ve never been one to give up, but just this week I’ve decided to give up and what I mean by that is that I’ve decided to stop mourning what I used to be and accept what I am now and move on as best I can. Living in the moment is all I can do. Another level of enlightenment. :)

    • fibrorelief

      It’s hard to get to that point….of stopping the mourning of our old lives and learning to live with the new. It took me a very long time to realize I had to do the same. I still find myself sometimes doing things I know I shouldn’t do, purely because I don’t want to ‘give up’ or ‘give in’ but I always pay for it eventually! :) I’ve adopted the saying “Let it be” I try to remind myself of that more often than not. I hope you get to feeling better soon!

  • livelifesimply

    Thank you for this post! I am a 28 year female with Fibro/ CFS/ Chronic Epsein Barr Virus among others. I was struck with a terrible case of mono in college which triggered my onset of illness. I struggled a lot with blaming myself as it was a time when I was burning the candle at both ends.

    I finished out college and just completed my alternate route degree in teaching along with working in the inner city. It was beyond exhausting and painful but I don’t know what else to do. I am only 28 and single… I am convinced being in a relationship will be impossible as I barely have energy for work- it is hard to think any man will find that desirable? I love the kids I work with but often worry if I can really make this work long term. I feel so alone an isloated and never make my pain or sickness an issue in front of others at work because I don’t want to give it power by speaking on it. I pray pray pray that I will be able to sustain a job because then what… I have had to leave work before and was overcome with a deep depression and anxiety for fear of never beign able to provide for myself or live on purpose. I really struggle wit these things and try like hell to stay positive no matter how I wake up but I find myself crying when I am alone.

    Would any positive minded people like to be a support for one another? I know I could really benefit from anyone going through a similar battle.

    All my best in your futures! We will overcome :)

    • fibrorelief

      You have a great attitude even through all you are dealing with…you will definitely OVERCOME! Keep pushing forward, keep trying different ways to deal with your ailments. It takes time and patience but you seem strong enough to be able to handle that! There are ways to have more better days than bad as far as the FMS/CFS is concerned…you just have to experiment until you find what works best for you. Keep reading, keep researching…
      xoxoxo
      Leana

  • Coleen Williams

    Omg…..thank you thank you thank you! Exactly “my” life. I am so greatful this was written because it is said perfectly! As a suffer of severe Fibro, i am so greatful how this was written. I will definatly send to many!
    Xoxo,
    Coleen Williams

    • fibrorelief

      Hi Coleen, Thank you for stopping by and taking the time to read my ramblings! It’s sometimes just so nice to know you aren’t the only ‘crazy’ one out there dealing with this ridiculous syndrome! xoxo

  • Frank Harrison

    I was diagnosed by my Consultant with Fibromyalgia in 1985/6. I I say 1985/6 because my Consultant says 1985 but he didn’t tell me until 1986. He did tell me though that I may have had it since the 1960′s when I used to wake up with tingling in my legs and unable to move.
    I have been in a wheelchair and out over the years.
    Unfortunatly my Doctor has told me I’m on a steady downward slope again.
    Fingers crossed It’s not all bad.
    I have been able over the years to think about where I need to go and how to get there but I am now suffering from memory loss and depression.
    As a side note my brothers and nieces alson hve Fibro.
    So does my wife, my daughters and one of my son’s.
    I was told you can’t pass it on but now I’m not so sure.

  • robin

    I am 43 and have been diagnois with fibro..for 21/2 yrs..although through the years i can look back and see when changes started…I never felt so alone ive lost friends and family acts as though i have a cold and i should take a pill rest and id feel better…its getting harder to handle the lonelyness and self image is just so low…i came across this site and read some it was like reading my own story.

    • fibrorelief

      It is hard, I know. Try to google suppport groups in your area or even online that you can communicate with who understand what you are going through. It’s easier sometimes to talk to people who do understand!

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  • Cristina

    This explains me without a doubt. It’s nice to see I’m not alone.

  • Dale Bullock

    This is me……no one understands when I cancel an engagement, they think I just don’t want their company. I also have diarrhea without any warning….so I don’t travel at all….yes, I cry because I love to go….thank you for writing this article.

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  • Kevin

    Thank you for publishing this article its not mine but it sums up everything I have to go through every day of my life having fibromyalgia I could not of summed it up better myself how I feel excellent

  • Tammy white

    I would just like other people to know that this is truly how my body feels. My life had changed completely,and I’m not so sure that I would have believed how painful this disease is,if it hadn’t happened to me. I’m truly blessed with a wonderful,caring,loving,and
    understanding husband. The love that my daughter and son have for me,doing error ends,house cleaning, and even bathing me at times,I’m blessed by a loving God that will not put more on me than I can bare.I hold my hope,faith,and trust in my Heavenly Father.

  • Laurie

    My grandmother has fibromyalgia is terrible to see her this way

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