Pristiq….new found med

So after all of the meds I’ve tried and stopped taking I found a wonderful new Doctor (yes, again) that actually cares and send me to a Rheumatologist (yes again, yes a different one) he did many tests to verify that I have FMS they like to spend our money and rack up the insurance dollars you know?! And of course, the outcome is the same that it’s been for the last 7 years…. fibromyalgia. DUH!

He suggested I try Pristiq even though I told him numerous times that I really didn’t want to take anymore medication. The pain in my hips was more than I could take and I didn’t see the benefit of popping pain pills every 4 hours, I tried it. And LOVED it! Then the insurance took it away. Then I fought and fought and fought to get it back with the help of my wonderful new Doctor. Finally I was approved to start taking it again.

As I made the list of medications I have tried over the 7 years to aide my Doctor in winning our battle against the insurance company I was astonished at the size of the list…. as was my new Doctor…. as was the pharmacist making the decision.  A whole 8×10 page typed in a 12 font. Absolutely obsurd! But apparently it was an eye opener and we won so hey! Whatever works.

I wanted to share this information with you all so that you can look into the benefits, side effects, etch of Pristiq. While there are side effects at the beginning of treatment, I had some mild nausea the first week and a little sweating, but the side effects stopped after the first couple of weeks. I could lay down with hip pain, I could walk without too much pain, I was energized and back to my old self. I was like a new Girl! People in my life even started commenting on how much happier I acted and looked. TO me that was well worth the fight in itself.

https://www.pristiq.com/

Pristiq is an antidepressant which helps all around for me. The link above will take you to their website so you can do your own research before talking with you Doctor. It may be worth you trying too!

Please let me know if you do, I’d love to hear other peoples feedback on how it works/doesn’t work and how it affects people differently. I don’t believe its FDA approved for Fibro yet, but as well know, that doesn’t mean it doesn’t help!

 


hip hip hooray!

Well today was a good day! I finally met my new Dr who is an internist/acupuncturist/chiropractor. Yes, he had a wall full of diplomas ;)

He was WONDERFUL! I’ve never had a Dr say ‘we will get you feeling better and we will do it the right way’ I about fell out of my chair. I wanted to jump up and down and kiss and hug that sweet little Asian Doctor!!!!!!!!!!!

I’m not delusional and neither is he, he didn’t say he would cure my fibro but he DID say he wants me off the meds too, which was the first sentence out of my mouth. He DID say he would work closely with me and do what we need to do to get everything on the right track and that there was no ‘miracle pill’ which he knew I already knew.

I got acupuncture today, oh.. my.  gosh.. I was ELATED! I haven’t had it done since I lived in Denver 3 years ago and I needed it something terrible! I walked out of there feeling like a new woman with far less pain that I went in with! YIPEEEE

I loved that he proved to me that he knew what he was doing by..instead of the normal ‘poke you there and see if you squeal’ he lightly touched different areas (inside my knees) and said ‘this is bad isn’t it?’ he could actually feel the knots and knew the difference in my ‘normal’ areas and the fibro infused areas. LOVE IT!

This makes you feel not so crazy, when someone else…especially a Dr can feel the areas that hurt so bad and acknowledge your pain. So needless to say, I love my new Dr.

We ordered blood work together…based on the research I had done and his knowledge of what needs to be done to rule everything out and get me on some sort of good track. I cannot wait to see him again next week for more acupuncture and the lab results. I may finally be on the right track.

So today…if your doctor isn’t doing what you think he/she should be doing and listening and actually helping…..go in search of a new one. I found mine on a fibro forum, yes it took A LOT of digging, but see how worth it it was?!

I hope you all are having an equally wonderful day!


fibro flare

I must admit this is something I haven’t really had to say in awhile and gratefully so. Fibro flare. Those two words are so little, yet entail SO MUCH.

I always have the aches and pains, the stiffness in the morning, the headaches, you know… and I guess I just learned to ignore it as much as possible. Last week I got a  nasty throat infection. Up all night, attempting to swallow what felt like glass, over and over. Needless to say I went to the Dr the next day and guess what he found…yup, you guessed it…nothing. Nothing, really??!! How can swallowing glass for 2 days be nothing?

So now I’m on Amoxicillin and waiting patiently for this infection to leave. I understand that if you get an infection anywhere in your body you can be thrown into a nasty fibro flare. Yup, I understand that far too well this week. Oh. My. Gosh.The. Pain.  I love using periods in between words, doesn’t it just make your statement far more serious? :)

Pain. In every inch of my body. Exaggeration you ask? Man oh man do I wish! I cannot take this pain. I’m prepared to take Vicodin. Honestly, I’m contemplating taking an Oxycontin which I haven’t taken in 3 years. I’m in that much pain throughout my entire body. The massage alleviated some of the pain for a couple days but now it’s back with a vengeance.

I’ve found yet ANOTHER Dr. whom I actually located on  a FMS forum online so I’m really hoping he is the one. He’s an M.D. but also holistic and works with acupuncture, all which I love. I’m prepared to go off all my meds and start anew. Hmmm…does this sound familiar? I’m pretty sure I typed this all a few months ago, and a few months before that!

I found a new website in my searching for tests that I need to ask him for, I’m wondering if you all can give me any insight to anything she speaks about on her website. I also ended up on a depression website through this one and I have to admit I was quite surprised with the results. I knew I’d been ‘down’ lately but I wouldn’t have put the depression label on myself. Apparently I was wrong. In talking with my wife about this she pointed out that I have been quite moody lately and very ‘up and down’ all within a matter of hours/minutes and she also chalked it up to my being in more pain than usu. I snapped at her and didn’t even know it. OK, something has to give now.

http://www.foodsforfibromyalgia.com/about.html

http://www.gethelpfordepression.info/Tests/FinishedTests.aspx

I would really really like to hear from any of you that have had ANY of these tests done…were they worth it? I don’t care about the cost, I’ll find a way to pay for the part the insurance doesn’t cover. I just want to know if they are worth my time, effort and going off all my meds and starting over.

I hope everyone is having a fibro flare free day today….FFF….has a good ring to it! I wish you all a FFF Day! :)


print a few of these out and hand them out as necessary! haha

Image


Slacker, slacker, slacker

Wow what a slacker indeed! It’s been 2 months since I was here. Feels like yesterday! So I still haven’t found the perfect Doctor. I’m pretty sure that person does not even exist…or at least not on my health insurance!

I’m overwhelmed with all of the comments from you all lately, thank you so much! I started this blog with the hopes of helping just one other person to feel better, or at least to feel not alone in this fight.

I’m taking the savella at 25mg a day, I found this to be the best dose for me, despite what my Dr thinks. I’m pretty sure at this point she has realized that I know far more about Fibromyalgia than she could ever hope to…or want to! :)

I haven’t told anyone at my new job about the Fibro yet and honestly don’t intend to, but I have to tell you that when you are 37 years old and it takes you 5 minutes to get up and stretch your muscles enough to get to the bathroom, people begin asking questions lol Yesterday I ran into a wall. Yup….straight into a wall, as if someone had erected it 2 seconds before I walked by it and I didn’t know it existed. It’s been there since I started over a year ago. Talk about embarrassing! I immediately started laughing but when I ‘came to’ so to speak there were 4 people standing there staring at me as if I had passed out and died. hahahahaha! The Office manager even wanted to send me to urgent care to be sure there was nothing wrong with me. Luckily, I passed it off as having a migraine earlier in they day and told her that sometimes my migraine meds make me a little ‘funny.’ I wonder how  many ridiculous accidents I can have before someone demands I get a brain scan!

Oh the joys of fibromyalgia…..they just never end do they?!

On the flip side, walking 1-2 miles 3-4X a week have done WONDERFUL things for my body! On days when I absolutely don’t have the energy, I simply stay home and do some light yoga or play ball with the doggy and rest my achy body. Getting started is the hardest part and making myself leave the house after getting home from work is a chore too but I’m sleeping better and the pain in the hips/thighs is starting to subside so that makes me oh so very happy. I’m sure that there will be another deep, dark muscle that rears it’s ugly, tight head soon and there are plenty of little ones, but you just got to keep pushing forward to make yourself feel better.

I wish you all pain free days and happy thoughts.

Get those vitamin levels checked! It could be worth finding out what you’re low on, the magnesium, B-12 and Melotonin have been a wonderful thing for me!

 


Back to the drugs

Does that feel like a constant saying to anyone but me? “Back to the drugs”

I stopped the Savella and went to the Dr, completely excited about the S.H.I.N.E protocol I did so much research on and was so excited to start! As usual…I was completely let down by the so called Doctor. “Fibromyalgia is just so hard to treat because everyone is different, I recommend you go back on the Savella and stay with it for awhile longer”

The Savella drug rep had probably recently been by to see her as she pushed the sample triton packet for me to start it up again. I politely declined, through pushing back the tears and left her office.

I just sat in the car and cried. All I wanted was some tests for vitamin levels and a few other things. I didn’t ask for her to heal me. I didn’t ask her to do anything really, check some boxes on a form and sign it. Simple. I could even read the results on my own. This isn’t my first time, lady.

I really just wanted to march back up to her office and say ‘look B*&^H…you don’t have to deal with this crap every day of your life so it’s easy for you to brush me off and push some damn pill on me, being in constant pain sucks!’ If only I had the cajones. hahaha!

So back on the Savella with the dizzy spells and the spinning eyes and the ever present, imaginary earthquakes. On the upside it’s as though I’m on my very own private roller coaster.

I would still recommend FMS sufferers try it, if covered well by insurance and have access to it, especially if you can get the trial dose from your Dr. It supposedly doesn’t affect everyone the same way, imagine that. The pain level is definitely decreased which is always a wonderful thing!

I’d love to hear anyone’s comments or feedback on Savella or the S.H.I.N.E protocol!


Savella update and other ‘news’

I am the world’s worst slacker lately on blogging. Working 40 hours a week, a new puppy and keeping a house in order takes a toll on a normal person, let alone us FMSers.

I couldn’t believe that it was October when I started the Savella, it seems like just a few weeks ago! I’d like to continue on the path of saying that it was my ‘miracle drug’ but as we all know…the reality of it is, there is no such thing.

I weaned myself off the Savella a week or so ago. I could not take the insane dizzy spells, nausea and heart palps any longer.  I was having numerous tender spots popping back up and I felt that the drug may be doing nothing more than what a placebo may do with the ‘brain effect’ so I stopped.

I am juicing 3 times per day, eating almost completely raw and doing what I can for exercise. I have tried this once before and it is so darn hard to stick to that I gave up. Actually, I didn’t do the juicing, but the raw diet I tried. I am enjoying the juicing and luckily found an inexpensive ‘starter’ juicer at Kohls for around $35, we are also lucky to have a farmers market up the street that sells fruits and veggies far cheaper than a regular grocery store. I’m enjoying the juicing and it does seem to help me feel better than eating all the fried, white flour, bad for you foods out there in the world! No real surprise there though.

Here’s the thing though. The tender points on the insides of my knees hurt far more than I EVER remember before the Savella. Did I just get used to them not hurting with the Savella? Maybe… I went for my monthly acupressure massage last night and I honestly thought I was going to jump up off that bed and punch for Steven in the face if he touched the inside of my knees one more time! Unbearable pain. I’ve also noticed other areas that seem to hurt worse than before the Savella, wrists and elbows.

Oh and get this one; last week, I actually PULLED MY HAND! How does one do that you ask? Good question as I have absolutely NO CLUE. I was lounging on the sofa and went to pick up a ball to throw to my baby Lily, my hand went from a flat, resting position to a cupping position on the ball and it felt as though someone had my hand in two vice grips and they were pulling them apart. I literally cried. I cried and cried and cried until the intense ‘charlie horse’ type muscle spasm stopped. For 2 days I could not use that hand. I could not grip anything at all, I could barely move my fingers. I used my tens unit for almost 2 days straight trying to get the muscle to loosen up in there. Astonishing….a pulled hand. That’s one I never thought I’d experience.

I’ve also noticed that my new puppy, who now weighs a whopping 12 pounds cannot even come near me without me saying ‘ouch, ouch, don’t do that, don’t walk on me’ 12 pounds…really?! The little paws cut into my body like knives and the pain seems to last for an eternity in each paw print. ‘This isn’t normal’ is what I constantly find myself thinking. Oh duh, right, I’m NOT normal…..

So here is what I am exploring now:

S.H.I.N.E.  (click here for story)

I would LOVE to hear if any of you have heard of this, tried this, know someone else that has. I’m making an appointment to go see my Dr and taking all of this information to her when I go. Actually, I think I’ll email it to her BEFORE hand in the hopes that she will read it and research it BEFORE I get there. I wonder what the chances of that happening really are?! ha!

I guess I’ve just accepted that my constant looking for the remedy that works best for me is a part of my life. It may be that way for the rest of my life. But in the end I hope it’s worth it. I must say the few months that I started to feel ‘normal’ again were SO SO GOOD! So at least that gives me something to strive for. I believe that there HAS to be something out there that won’t have as many (or more) side effects as what you are trying to treat and though I fell off of the all natural wagon to try Savella, and it was worth it short term, I’m back on the wagon and I will keep trying.

As always, I love to hear what you are trying and what is working/what is not working. I figure someday I’ll have enough information to put together a book. Or at that point, it may be more like a dictionary of Fibro potential cures/supplements/ideas/helps, etc. I’m guessing it’ll be about 600 pages long! hahaha! I’ll be sure to list everyone’s name that contributed…there goes another 600 pages.

I hope you all are feeling well! xo


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